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Yeadon charity helps fund research into rare form of epilepsy
10:00am Tuesday 24th September 2013 in Local news
A Yeadon-based epilepsy charity is funding research into a rare form of the disorder.
Epilepsy Action, a national charity, has given a research grant in memory of 22-month-old Max Miller Prior, from Wimborne, who suffered from Dravet syndrome and who died suddenly in 2011.
The research, to be carried out by UCL’s Institute of Neurology, is jointly funded by Epilepsy Action and Dravet Syndrome UK. The study has been made possible in part by a donation to the Yeadon charity from TeamMAX, which was set up by Max’s mother Gail, and which has raised £30,000 to fund the research.
Dravet syndrome is a very rare form of childhood epilepsy – affecting only one or two children out of every 500 with epilepsy. The syndrome is resistant to most epilepsy medicines, and children with the condition need to be cared for throughout their lives. They are also at an increased risk of premature death.
The research will determine if the gene in the brain responsible for Dravet syndrome also causes problems with the heart, particularly when children are unwell.
Margaret Rawnsley, research officer at Epilepsy Action, said: “We are delighted to be collaborating with Dravet Syndrome UK in funding this important study. We are confident that the results will contribute to our understanding of SUDEP (sudden unexpected death in epilepsy). We would like to thank Gail for making it possible. It is a fantastic tribute to Max.”